This study, titled “People talk about FASD diagnosis but barely any young people are asked about it”: Diagnosis perspectives and disability identity in adolescents with FASD, explores a critical gap in FASD research, young people’s own perspectives on their diagnosis and developing identity. Using participatory photovoice methodology, the authors center the voices of eight adolescents living with FASD in the UK. The findings offer nuanced insights into how young people understand the meaning of their diagnosis, how it relates to their sense of self, and the evolving nature of disability identity. Grounded in a bio-psychosocial model and Gibson’s disability identity framework, this research underscores the importance of supporting adolescents with FASD through inclusive dialogue, self-advocacy, and positive identity formation.
