Well-being and support preferences of siblings of individuals with a neurodevelopmental condition in regional and remote Australia: a mixed methods investigation

This recent mixed-methods study explored the well-being and support preferences of siblings of individuals with neurodevelopmental conditions, including FASD, living in regional and remote Australia. The research found that siblings often experience emotional stress, feelings of being overlooked, and limited access to supports, while also demonstrating resilience and adaptability. The study highlighted that resilience and social support, particularly supportive relationships within families, schools, and communities, were strongly connected to improved well-being. It also emphasized the importance of accessible supports, peer connection, and opportunities for siblings to be recognized as individuals with their own needs and identities.  

Reflection for WRaP FASD Instructional Coaches

While this research was conducted in Australia, many of the findings strongly resonate within Alberta, particularly in rural and remote communities where families may experience barriers to accessing supports and services. The study is an important reminder that siblings of students with FASD or other neurodevelopmental conditions may also be quietly carrying stress, responsibility, and emotional impacts within the family system. Education staff are often in a unique position to notice these students, provide encouragement, and create environments where they feel included, understood, and supported. The findings reinforce the value of relationship-based, family-centred, and community-informed approaches that recognize the needs of the whole family, including siblings who are often overlooked.

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